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My mother is 95 and has dementia. She is in the hospital and her stools are black and her hemoglobin is low. They say she has upper GI bleeding. Has anyone's senior loved one who has dementia had an upper GI endoscopy? How did it go? At this time I am not going to consent to it as I am concerned her dementia will get worse from the anesthesia. They say it's "light" anesthesia but still I am concerned. Also I dont want her to have any physical issues from the procedure. She is getting Protonix at the moment.

I don’t have any direct experience but I think you are right to be concerned. I believe there comes a time when invasive procedures are not indicated and frankly, I think it’s inappropriate to recommend an endoscopy for a 95-year-old with dementia. I suppose they have to cover themselves, but I hope they are not pushing it. I would recommend palliative or hospice care to keep your mom comfortable when she comes home. Please keep us posted.
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Reply to MidwestOT
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Turns out she did not need the endoscopy. Her stools changed to a greenish color showing improvement. Her Hemoglobin was also at a good level.
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Reply to parentson457
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AlvaDeer Dec 13, 2024
So nice to hear GOOD NEWS for a change. I am glad of this update and I thank you for updating us. So few return to do it and it sometimes makes me question if they were ever really real. I wish you continued good luck here.
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It's very hard to know there is something wrong yet choose to do nothing about it. At your mother's age and with dementia she already has what is essentially a terminal diagnosis, I would only consider medical intervention if it would alleviate pain and suffering during her final days. Hospice seems the appropriate choice now ((hugs)).
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Reply to cwillie
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There is a whole lot of testing they can do that isn't this invasive.
For instance her stools can be tested for H Pylori which is the common cause of ulcers which is the common cause of blood in the stool (dark blood means upper GI bleeding). OR they can give a course of cipro and hope for the best. It rids the system of any H Pylori caused ulcerations. It is less liked now as it can cause some tendon complications, but still a good antibiotic.

Now if you are looking at say a stomach cancer they would be able to ID that and you would be able to say "Hospice and Palliative care now please", but you would at least KNOW.
The medication is indeed light and almost always safe. However, as a nurse I saw a young woman die of the procedure when the vagus nerve was hit and she went into a dysrhytmia of the heart. She happened to be the daughter of a fellow RN. The procedure is quick and often very easily done.

So you have a few options here, but I would say one is NOT to allow the bleeding to continue if it can easily be stopped.
I think that I would ask for a course of Cipro if they would give.
Then if the black stools continued I would want to know what is happening in order to make further decisions.
But with a 95 year old with dementia I can well see a reason to say no interventions at all, and if the stools continue dark and the HH continues downward, get in hospice and allow mom to go of whatever illness is currently on board. With this decision being yours I can easily make a case for going EITHER way you are most comfortable with.

Ultimately I can see a very good case for saying "Let's go with a course of cipro. If that's not the answer we don't even need to know the question. We would need hospice, the good drugs, and a peaceful exit."

Sorry. It's all on you as so often happens. I as an RN would have a hard time MYSELF with deciding this one even for myself. Were I well and happy I would go with this USUALLY very easy and uncomplicated procedure. Were I in the throes of dementia, I would want to go of whatever I could get to take me. My brother had early Lewy's and he felt the same and was GLAD to have sepsis on the scene to take help him out.
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Reply to AlvaDeer
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my elderly moms doctor told her either upper end endoscopy or colonoscopy are not advised at that age as the linings could easily be perforated by such invasive procedures which would cause more damage then not doing it
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Reply to Karsten
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I chose hospice care for my mother with dementia at that age rather than invasive tests that would lead to more pain and suffering.

Best of luck.
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Reply to lealonnie1
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Is she on blood thinners? If so, I would have them stopped. They cause internal bleeding after years of use. By taking her off, her blood will clot and maybe stop the bleed or slow it down.

I agree, its time for Hospice. I would never put my Mom thru something like this.
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Reply to JoAnn29
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When my dad was 79 with frontotemporal dementia, he also had various symptoms and bloodwork results that his geriatrician said were indicative of some kind of cancer, likely gastrointestinal or metastasized melanoma. Geriatrician recommended several specialist visits and each one prescribed various tests, some invasive or otherwise unpleasant or difficult to get him to cooperate. (Whereas a year before he did cooperate with a dental treatment to my surprise — because his tooth hurt.) Anyway, he was adamantly opposed to invasive tests of any kind, as was my mom for him. I as his POA and medical health care proxy respected his wishes. He went into hospice. No regrets.
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Reply to Suzy23
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dogwithav Dec 21, 2024
Yes, I am with you.
My mother has cancer along with late stage dementia. she is 95, will be 96 in February. She has vaginal bleeding that originally thought to be a bad UTI. When UTI was ruled out, NP did a manual vaginal check for bloodwork. That was extremely upsetting, mom didn't understand. Met with medical staff about options. Blood tests indicated 3 types of cancer: Colon, vaginal\ovarian and a 3rd indeterminate. To know for sure what type would require a trip to hospital for an invasive procedure that would have been torture for mom to endure. And to what end? She is almost 96, and I wanted her to just be comfortable and peaceful during the end of life process. She is now in hospice, on pain medication, anti-agitation meds, now in a wheelchair (she was using a walker until just before Thanksgiving) and is loving staying in the community room. She is watching all the comings and goings, like she used to do when she sat on her porch watching the neighborhood and visiting with family and friends.
When I visit, I hold her hand, scratch her back and tell her all the stories she used to tell me. We sing, laugh and I bring what we call a "hug puppy" for hugging her family that can't visit her. I bring cookies and sometimes we sing.
She is dying, but she is not in pain, is feisty and makes the staff laugh with her comments. I want to enjoy what is left of a long life, well lived.
There comes a time when you accept the journey that began when mom started many years ago. She gave birth to me, its now my job to help her navigate dying.
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I am an RN and this is a situation I deal with regularly. Let me be frank, your mother is having bleeding in her upper gastrointestinal tract. It is bad enough to make her poop black and to make her lose enough blood to lower her blood counts. Without treatment, she will need to have blood transfusion(s). Protonix drip and blood transfusions are only treating the symptoms and not a solution. She needs an upper gi scope - called an esophagogastroduodenoscopy (EGD). The scope is a flexible tube that is passed down the throat into the esophagus, stomach and first part of the small intestine so that the tiny camera can identify - and fix! - the source of bleeding. She will usually not be "put to sleep" but will usually receive medication to help her relax and cooperate with the procedure. She will be monitored closely afterwards as she recovers from the medications and the procedure. Usually, the patient is able to have fluids to eat later in the day and advance to regular food as tolerated. Confusion is usually minimal and hospital staff are well-equipped to handle any difficulties along these lines.

Most of the time, medications the person normally takes have caused irritation to the lining of the GI tract. To avoid this in the future, make sure the person drinks plenty of fluids or eats something when taking meds.
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Reply to Taarna
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There is no prep for an upper endoscopy and the anesthesia is very light . The whole test is brief, But think about, if they find a bleed what is the treatment? Does she have an advanced directive? Is even putting her through this at 95 worth the time and effort and anxiety for all of you?
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